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COVID-19 and Advance Care Planning

Advance Care Planning
Advance Care Planning and End of Life Planning During the COVID-19 Pandemic

COVID-19 = Special Urgency

What Special Urgency?

Isn’t it ironic that after 8 years of putting out my newsletter and talking to people about the importance of advance care planning, we are faced with a healthcare challenge of monumental proportion? One that emphasizes end of life plan reasons but, equally if not more importantly advance care planning, in many ways.

As I sit down to write my 100th newsletter, the current COVID-19 pandemic is sweeping the world and there is a special urgency to do advance care planning; by having the conversation, identifying someone to speak for you, and completing an advance directive.

Every day, there are new articles, by people who have never addressed the subject before, touting the importance of doing an advance directive and doing it NOW!

I receive calls from reporters asking for clarifications and quotes about how to make the process work. The momentum is building and hopefully people will take heed to the warning to have their conversations and complete their directives. This would be wonderful as it would be great to have something positive come out of this pandemic.

COVID-19 is a New Call to Action!

Your help is needed to continue to move the bar. If you’ve done your directive already, take a look at it and see if it is still current and meets your needs in this day and age. Update as necessary. Make certain the right people have a copy.

If you haven’t gotten there yet, now is a great time as the resources to plan a funeral, create a Last Will or Living Trust, and advance care planning, are available to make it easy for you to act.

If you still need help, don’t hesitate to get in touch with me. My contact information is below. Talk to your friends and loved ones. You know, those people whom you have mentioned it to before but who haven’t moved forward to do their plan.

Bug them, emphasize its importance. Remind them of the adage:

Failing to Plan – Is Planning to Fail!

They need this for themselves as well as their families. Equally as important, are the healthcare workers who are doing such a Herculean effort during these trying times. Make sure that they have access to people’s advance directives. This will allow them to be guided by the goals and preferences of their patients and not guessing what the best treatment course for a particular individual might be.

I have neighbors who have been very clear as to their plans. They are sheltering in place because of their ages and their medical conditions. They have made it very clear that they will not go to the hospital if they should come down with the COVID-19 virus. They feel strongly that they are at that point in their lives that they do not wish to go on the ventilator or receive aggressive care during their end of life stages. If they can survive the virus from home, great. If not, it was meant to be.

Now, let me be clear, I am not suggesting that other people should take this stance. We all need and deserve to make our own decisions whatever may be best for each of us individually. Thus, the advance directive is a critically necessary important part of your end of life planning and funeral estate planning!! Remember, it is still critically important to:

Have “The Conversation” … and … Give ‘The Gift

Courtesy of M. Jane Markley, www.mjmarkley.com.
If you have any questions, you can contact her directly at jane@mjmarkley.com.

Death Facebook Twitter Instagram Social Media Passwords

Death and Social Media Passwords
Facebook, Twitter, and Instagram

What is Your Digital Legacy Plan?

Most people plan to document their final wishes in a last will and testament but not many consider including instructions on what should happen to their Facebook page when they die. With over 1.9 billion users on Facebook, over 300 million on Twitter, and who knows how many on other online sites, having a digital legacy plan is becoming more important than ever in these modern times.

Where do you Start?

It’s difficult enough trying to remember login passwords, so creating a detailed plan for all your email and social media accounts can seem like a daunting task. Still, it’s best to start planning sooner rather than later, and some of the media apps already have documented plans for dealing with accounts of the deceased. Here’s how Facebook, Twitter, and Instagram handle it:

What happens to my Facebook page when I die?

Facebook is the most popular networking app in the world and they offer two options for your profile after your death:

1. Memorialization – your profile can be memorialized to serve as a gathering place for family and friends to post memories and remembrances. You can choose to memorialize your page in advance by selecting a “legacy contact” to administer the account after your passing. The legacy contact (who needs to be a Facebook friend) will be responsible for managing the account, e.g., updating profile pictures or responding to friend requests. However, they have limited capabilities and cannot read your private messages or gain full access to your profile.

2. Permanent deletion – this option can also be requested in advance. Once your account is permanently deleted, it will no longer be seen on Facebook and cannot be reactivated. You’ll still need to select a legacy contact for this, but the person won’t be able to log into your account or make posts/updates.

Note that only verified immediate family members can ask Facebook to remove a loved one’s account, and they must provide either a valid death certificate or proof of authority and proof of their loved one’s passing in order to get the account deactivated.

What happens to my Twitter profile when I die?

Twitter’s policy states that they can only deactivate a dead person’s account based on a request from a verified family member or estate executor. After the deactivation request is received, Twitter ensures validity by obtaining details such as the death certificate, obituary information, and requester identification. Only then will the deceased’s account be removed from the site.

Twitter also states they are unable to provide account access to anyone other than the account owner, regardless of their relationship to the deceased. So without the necessary proof of death, vital statistics, and no memorialization options, a dead person’s Twitter account is often left as is, which can sometimes lead to unfortunate tweets from beyond.

What happens to my Instagram account when I die?

Instagram is owned by Facebook so they also offer account removal or memorialization based on a valid request from an immediate family member. The requester must fill out a form to get the process started and provide proof of death (death certificate, obituary notice) as well as evidence that they are related to the deceased. Unlike their parent company, Instagram does not allow you to choose removal or memorialization in advance, and they do not provide account access or login details for a memorialized account.

Creating a Digital Legacy Plan

Facebook, Twitter, and Instagram comprise only a small share of an average person’s digital legacy. Other digital assets include various online accounts such as:

  • Email
  • Personal & business websites
  • Social media profiles (LinkedIn, Pinterest, YouTube, Google+, Snapchat)
  • Communication apps (Skype, WhatsApp, FaceTime)
  • Gaming (Xbox, Wii, PlayStation)
  • Financial service sites (banking, trading, retirement)
  • Shopping sites (Amazon, eBay, Craigslist, brand stores)
  • Entertainment accounts (Netflix, Hulu, cable tv)
  • Other apps & accounts (Uber, Airbnb, Expedia, PayPal, etc.)

The list can go on forever depending on how extensive your digital footprint is. That’s why it’s important to make a digital legacy plan and select a “digital executor” to manage, protect, and preserve your online assets. Getting started on the planning process early is the only way to ensure all your accounts are handled properly in accordance with your end of life plans and preferences.

Choose a digital executor who is technically savvy and sensitive to the confidential details of your digital estate. Whoever you select will need to be aware of state laws governing access to a person’s digital assets.

The Revised Fiduciary Access to Digital Assets Act, completed by the Uniform Law Commission and currently enacted in 35 states, allows fiduciaries or executors to manage digital property like computer files, web domains, and virtual currency. However, the Act restricts access to electronic communications such as email, text messages, and social media accounts unless the original user consented in a will, living trust, power of attorney, or other record. If you already have a will, you can add your digital legacy plan to your will to ensure legality.

Creating a digital legacy plan to manage your online assets is just as important as having a will to protect your physical assets when you die, so make sure to include one in your end of life decision-making process. It will give you and your family much-needed peace of mind when the time comes.

Contributed by Christine Gatuiria at FuneralContentCreative. She writes and creates engaging content for the funeral and death care industry.

Death and Taxes

Death and Taxes are Certain

Most of us have heard the old adage; “the two certainties in life are death and taxes“.  As a result of this statement, National Healthcare Decisions Day comes every year on April 16th, the day after taxes.  The goal is to attempt to bring these two matters together.

Jane Markley tells her clients; “Most of us dutifully complete our taxes every year.  So why not also make time to review your end of life plans and advance directives as well?”  Truth be told, completing your plans for death requires much less time and effort than completing your taxes.  Furthermore, completing your death matters only needs to be done once, whereas taxes must be completed each and every year.

It’s NEVER Too Soon

For those of you who haven’t had “the end of life conversation”, and/or documented your healthcare wishes and other final plans and preferences, please remember this all-important statement:  It’s only too soon…until it is too late.”

Knowing you love your family and loved ones, ask yourself this question;  “What is holding you up from completing key matters such as your end of life planning, funeral estate planning, last will, power of attorney, and advance directives?”

Plan NOW!  We Can Help

When it comes to death and taxes, it is very easy to find reasons to procrastinate and postpone these matters.  However, please let us help you preplan and “give the gift of love” to your family and friends.

Don’t wait for the crisis.  Don’t wait until it’s too late.  Don’t leave your loves ones in a difficult situation.  Don’t wait until it’s to late to learn how to prepay funeral expenses.  Let us help you make this difficult situation a little easier.  Let us help you have “the conversation” now, plan and prepare in advance today!

Your First Step is EASY

A great way to start is to click here and access our free Family Record Guide.  You won’t regret it, your loved ones will thank you, and you will leave a legacy of love!

Children and Funerals

How To Prepare a Child For A Funeral

The death of a close friend or family member is never easy on children and the funeral represents the most difficult period. This is where children need to interact with others – it represents a need for them to both understand what is going on and behave well, despite whatever strong emotions they may be feeling. As such, here are a few tips to keep in mind when preparing a child for such an occasion.

Explaining Death

Explaining the concept of death to a child is a difficult topic in and of itself, and that’s probably why many people think it’s actually inappropriate to take kids to a funeral. How can a child understand seeing someone they knew if they aren’t aware of their death? In the youngest of people, this can lead to a lot of confusion. Even a basic understanding of death will help children understand the funeral. It will also give the event purpose and help kids realize its significance, but the talking needs to happen before the funeral.

Explain The Process

Similarly, you should always explain the process of events to a child before they attend. While they might not understand or appreciate every detail, you need to ensure they understand the vital parts, such as lowering caskets or cremating the body (depending on the nature of the funeral in question). This way, they won’t be surprised when such things occur, allowing the procedure to carry on without children interrupting or asking too many questions. The same can also be said for the funeral etiquette and dress code – let children know in advance, so you don’t upset or surprise them with formal clothing on the day itself.

How To Dress A Child

A funeral is one of those occasions where, despite protests, you need to ensure they wear a certain level of formal attire. A young child will likely not understand the need to look smart, so it’s important you take charge of this aspect. The smaller the child is, the less you arguably need to do, as nobody will expect a 2 or 3 year old to arrive in a suit. Still, they should dress in a similar style to adults: formally and with dark colors. For most boys, a white shirt will suffice, although pre-teens and teenagers can also wear a tie or suit. As for girls, a blouse will do, as will black dresses, giving you plenty of options.

Footwear

The same can also be said for shoes. Children should wear shoes of a decent formality – think along the lines of school shoes as an ideal minimal baseline. Trainers or sports shoes, for instance, will not only look wrong, but plant the wrong idea in a child’s mind. Formal shoes will remind them of school and other periods where they’ve had to behave, enforcing the importance of the events to come. It will also look more respectful, as the child can blend in with the crowd of predominantly adult attendants.

Seating and Placement

Once you’ve explained procedures and dressed the child, where do you sit at the location itself? Unless you’re of the immediate family, it’s better to sit someone near the back or sides, preferably close to the exit. This ensures children aren’t in the way – in case something goes wrong – and you can always take them outside if they become distressed. Depending on their relation to the deceased in question, children may be very upset, or even just curious, so it helps to be near an escape route so as not to disturb proceedings.

As you can see, there are a number of key differences between how children and adults experience how to plan a funeral, so it’s important for parents and other caretakers to step in and take care of children. Funerals can be a tough time but children have a right to understand what’s going on. With these tips, you should be able to prepare any child for a respectful and peaceful funeral.

About The Author:   Robert Bruce has a passion for lending his voice towards multiple issues involving the funeral and memorial industry. When he’s not working with Great Lakes Caskets, he enjoys his hobby as a writer.

Death, Organ Donor, and Organ Donation

Death and Organ Donation

Contributed by Elizabeth Hurlow-Hannah, 301.785.7619, elizabeth@yourexitstrategy.org

Birth and death are opposites, so why don’t we give them equal air-time? Just as talking about sex doesn’t make you pregnant, you won’t drop dead because you’ve talked about death and dying!

Diagnosed with Stage IIIA breast cancer in 2004, I’m assured that my soul will return to heaven whenever I die, but who can use my body?

My cousin, Mike, suffered a cerebral aneurysm while shopping, and the paramedics kept him alive to harvest his organs.

When Tom was diagnosed with Alzheimer’s disease at 64, he said, “Let me sign the papers to donate my brain to the Neurology unit to help someone else.”

Organ Donation:

These websites will bring you up to speed:

http://www.organdonor.gov at the U.S. Department of Health and Human Service

123,361 people are waiting for an organ 18 people will die each day waiting for an organ 1 organ donor can save up to 8 lives

Watch this five-minute video http://donatelife.net/understanding-donation/ to learn how the National Wait Transplantation works. Click on your state here: http://organdonor.gov/becomingdonor/stateregistries.html

Organ Donation/Transplantation:

United Network for Organ Sharing (UNOS) http://unos.org/is the private, non-profit organization that manages the nation’s organ transplant system under contract with the federal government.

Whole Body Donation for medical research and education:

Both organizations cover all costs: transportation; death certificates; cremation and return of cremains to your family.

Science Care www.sciencecare.com, 800.417.3747, info@sciencecare.com

MedCure, www.medcure.org, 866.560.2525, info@medcure.org

Query medical schools in your state: Is pre-registration necessary?

International Whole Body Donation:

If you die overseas, check with medical schools in that country about donation.

Read this article, The process of donating a whole body for medical research written by Sara Madsen, Editor in Chief for US Funerals Online. http://www.us-funerals.com/body-donation.html#.VMQNPS7uZ8o [Permission granted.

Check out the American Association of Tissue Banks (AATB) a professional, non-profit, scientific and educational organization. http://www.aatb.org

Be assured that all of these procedures are legal and ethical. No one removes body parts to sell on the black market. Ask yourself, “WHAT IF _________ developed an illness and was put on the transplant list? How would I react? What could I do to help?”

I signed up with MedCure in 2009, because it’s an even barter: they pay all costs associated with retrieving my body and using it for medical research; I avoid paying $7K-$10K in funeral costs —which adds a bump to my grandchildren’s educational fund. Isn’t this the best win-win situation?

Life’s never easy, sometimes not fair. We need to roll with the cards we’re dealt, even when it looks like a lousy hand.

How about you? What are you going to do? I’d love to hear your thoughts.

Click Here To View Our Most Popular Free Funeral Guides

How to Talk Death with a Doctor

Advance Care Planning

How to Talk to Your Doctor About Death

Jane Markley,  one of the most widely-recognized experts on advance care planning, was kind enough to share dome very valuable information about end of life planning.

Jennifer Brokaw, MD is an Emergency Department physician, and the daughter of commentator Tom Brokaw.  She is another excellent specialist who emphasizes the importance and value of advance care planning.

Although most people don’t like to talk about death and dying, the harsh reality is death is something we cannot avoid, postpone, or predict.  In fact, Dr. Brokaw believes that in order to live your best life, you need to think and talk about death.

MUST-SEE Video – How to Talk to Your Doctor About Death

In this extremely informative and educational video, Dr. Jennifer Brokaw opens up about the uncomfortable but vital conversations we should all have with our doctors, our families, and ourselves – well before we near our end of life.

Click Here to Watch This Video:
How to Talk to Your Doctor about Death

By |January 24th, 2015|Categories: Advance Care Planning, Death, death and dying, end of life, end-of-life planning|Tags: , , , , |Comments Off on How to Talk Death with a Doctor

Death Cafes and Dinner Parties??

Death Cafes

Death Cafes and Dinner Parties

 

I know what you are thinking.  “Why would anyone participate in something like this?  I like to enjoy my dinner and this doesn’t sound like fun.”  Talking about death over dinner might not be the usual way you get people over to your house for a meal, but it couldn’t be more crucial.

Too many people are dying in a way they wouldn’t choose, and too many of their loved ones are left feeling bereaved, guilty, and uncertain.  Having “the conversation” about end of life care wishes with family, friends, and even total strangers is an important step you can take to ensure that those wishes are understood and respected.

Death Cafes and Dinner Parties

These types of activities, also known as Tea Parties, Death Cafes, etc., have taken off worldwide.    And why is that?  It is because they work.  They allow people to discuss death and related issues and be open to a variety of opinions and issues in a non-judgmental and safe environment.  A colleague of mine, Laurel Lewis, has been hosting these dinner parties for several years with growing interest and attendance such that there is usually a waiting list.  You can learn more about her and what she does at http://laurelllewis.com.

You can also see a sample of one of her dinners on You Tube at http://youtu.be/N2SOlsDTXK8  (Deepak Chopra @ a death and dying dinner party!).  This dinner is rare as it includes a well known physician but that is certainly not necessary.

The Death Cafe which started in Europe is now in the States and lets you know what is happening so check it out at http://www.deathcafe.com .   Another site provides a tutorial on how to set up such a get together.  You can check it out here at http://www.deathoverdinner.org.  An alternative approach used by Paula Schneider of Nevada is to host “Open Forums on End of Life Issues.”  Whatever terms you need to use to get people there, listening, and engaging is what is important.

Why Not Take the First Step?

These dinners and teas are meant specifically for any person who is going to die.  Does that describe you?  So, you need not wait till Thanksgiving this year to have the conversation with family and friends.  You can start now either hosting your own party or getting on line and seeing what meeting is in your area that you can attend to have the experience.

Yes, as I always remind you, it is time to have ‘the conversation’ because you never know when the crisis will occur.  Your discussions will help you feel more comfortable about documenting your wishes allowing you to give ‘the gift’ to your friends and loved ones.  Unless you are certain of your immortality, now is the time to get started!

*Contributed by M. Jane Markley Consulting, LLC

 

By |February 15th, 2014|Categories: Death, death and dying, death cafes, death dinner parties, death over dinner, end of life|Tags: , , , , , , |Comments Off on Death Cafes and Dinner Parties??